The other night, I was watching My Sister's Keeper with my husband.  About 15 minutes into the movie, I started crying. As the next 30  minutes, my crying got worse and worse, until my husband had to turn it  off and hold me while I sobbed into his chest. Yes, the movie is sad. It  has sad content... It's about a family that is dealing with their  oldest daughter having Leukemia, and their youngest daughter was  constructed and born to be the donor for her older sister. The younger  wants medical emancipation - the ability to make her own decisions about  letting them take parts from her body, etc. The story is basically  about the turmoil that happens once the suit is filed against the  parents. It also includes many flashbacks of the illness of the older  girl.
I don't know exactly what made me start crying. The book, which I read  months ago, didn't have this effect on me. But once I started, I just  couldn't stop. I ended up having nightmares that night that were so  disturbing that my husband had to wake me up because I was crying and  hitting him in my sleep. I vaguely remember the dreams, but I have no  idea why I was hitting him.
I thought about it the next day. There were several things that struck  me in this movie. The girl with cancer refused to get out of bed one  day. She was depressed, she said. She was ugly. And everyone stared at  her. I think this is the point that made me cry. The more I thought  about it, the more I think I was catching up with the crying that I  didn't do when I was sick.
I understand how this little girl felt, even though I was not young when  it happened to me, the cancer that I had was not incurable or even  unfixable. But, I had my moments when it was everything I could do NOT  to lock myself in a room and sob myself to sleep. I really didn't feel  that I had that option. I felt, for many reasons, that I needed to put  on a brave face, both for my family and for my friends. I was not going  to be "the face of cancer." I was not going to be weak, and bedridden. I  was not going to be sick. I was going to laugh and enjoy life like I  was doing before I was diagnosed.
I felt I expected to be in good cheer, and happy all the time. So, I did  what was expected of me. I would go out, I would go to the place I  worked and I would visit people and "be happy." I cried maybe twice. But  usually it had nothing to do with being sick. I had a fight with a  friend, or one with my dad. Some teenage girls made fun of the way I  looked, and I was so upset, but I never cried about that. Most of the  time, I kept my thoughts to myself. I was lucky in that first round,  though. It seemed that I had a million friends. People seemed so happy  to see me, I got cards from work almost every week. The one time I was  hospitalized, my room was never empty. It was almost like people were  vying for my attention.
After I started getting better, suddenly no one wanted to talk to me.  People were cruel behind my back. Friends started dropping like flies. I  went back to work and was treated somewhat unfairly. At the same time,  my father found out he was dying of lung cancer. I truly felt I had no  one to talk to. I couldn't go home and voice my fears or my sadness.  Again, I had to remain upbeat, because we didn't want to upset my dad.  And I didn't want to upset my mom, either. She had enough to deal with.  When my dad died, I got apologies about the treatment I had received.  Some people came back to be my friend, others never came around. But  again, I never got to truly grieve in my own way. No one ever asked me  how I was doing. My friends were more worried about my mom (and  rightfully so), and so was I. I had to take care of her the first couple  of months, our roles had become reversed. I made that promise to my  dad.
Within two years of my dad's passing, I was diagnosed again with  Hodgkin's Lymphoma. This time was different. The chemo that they gave me  obviously didn't work the first time, and my body had already received  the maximum amounts of those drugs in my system. they had to try  something different. The day after I was diagnosed, I was formally let  go from my job. I wasn't even given a chance to say goodbye. My car -  that I picked out with my dad - died, so with the inheritance that I  had, I had to buy a new one. I felt like my life was falling apart.  Things had finally been going right. I cried about silly things. But  never really faced the big picture.
The new treatment I was on required me to be in the hospital for 6 days  at a time, every three weeks. So, I was alone. My mom tried to visit as  often as she could, but she was still working. Friends stopped by once  in a while, but I don't know if it was hard for them, or they just  couldn't come by. I had one friend that came by, but as soon as she got  there, her husband called and demanded that she come home. It broke my  heart. I was in about my third treatment, when I realized something was  wrong. I didn't feel right, and my head hurt. I was suddenly vomiting  all over the place, which was something that didn't happen before that.  The nurses had been treating me like a child, trying to help me use the  restroom, and teasing me about things that rather annoyed me. But when I  passed out and was scared and vomiting, they wouldn't come. A doctor  came and signed my release papers without even looking at me. I went  home. I looked awful.
Well, there is cancer awful, and there is this awful. This awful was  when I went home that night and had no idea who I was when I looked in  the mirror. My head faded into my chest and shoulders. I could barely  move, and it caused so much pain just to do that. I finally had to go to  bed. I couldn't sleep. My head just hurt so bad. I sat up in bed and  called out to my mom. I told her it was time to call the ambulance. I  tried to stand up, fell on the floor, narrowly missing the bottom of my  dresser, and vomited. I was somehow in the state of mind to remember to  turn my head so I didn't choke, and also to remind my mom that she  needed to open the gate. I really only remember being lifted over the  stairway, and then trying to pee while hoisted up on a gurney. The next  few days were a blur.
I was terrified. I was alone, the doctors and nurses weren't nice to me.  They put me in positions for extended periods of time where I had  trouble breathing. They had me covered in suction cups to monitor my  vitals, and every time I'd move, it would set off alarms. I am a side  sleeper, and I had to stay perfectly still on my back. I was warned not  to move. When they did an ultrasound on my chest area, they found that I  had a myocardial infarction - heart attack. There were blood clots all  between my wrists. It was caused by a staph infection at the site of my  Hickman Catheter (chest tube). So my catheter had to be removed. Oh, and  I had a sinus infection. That was why my head hurt. They told me that  if I moved too much, one of the blood clots could break free and kill  me. Yeah, I wasn't scared. At all.
After everything was said and done and I was in the ICU, people tried to  visit. Ok, just two. My grandma flew down to help my mom. My best  friend's Kevin and Heidi both came in. Two of my former coworkers tried  to visit, but I was unable to accept any more visitors. My coworkers had  dropped off a video tape for me. It was many of my old coworkers  telling me to get well. A few of them were crying. I couldn't watch the  whole thing the first time around because I would start crying and it  was dangerous for me to get too emotional. I had to wait and watch it  when I was a little bit more functional.
When I finally got moved into a regular ward after the ICU, the nurse I  had the first night told me that I could very easily die in my sleep. Or  something like that. Upon being released from the hospital a week or  two later, this nurse tried to hug me. I vomited on her. This was a  glimpse of happiness for me. After I returned home, strange things  affected me. Too much noise made me sick. Sudden laughter or crying made  me sick. My antibiotic made me sick every time I had to take it. My mom  was gone once a week for three weeks, because she wanted to take a  class on computers so she would get a free laptop for me. Grandma was  around for a while, but had to go home. I was told not to come into work  to visit, because it might upset my former co-workers. I couldn't drive  myself anywhere because I was confined to a wheel chair. I went to  visit another friend and he could barely even look at me. I was told  that I was bad for business. Another friend took advantage of me while I  was sick and vulnerable. I had very few visits from friends.
Around November, I got some happier news. I had been approved for  Italian Greyhound Rescue Adoption. They found a dog that would suit me  perfectly. I went to meet him and he loved me. I was unable to pick him  up until after I finished my treatment, so they agreed to take care of  him.
I finally had come to the bad place in my treatment. I was shipped off  to Beverly Hills and Cedar's Sinai Hospital Cancer Center for a stem  cell transplant. This may have been the hardest time for me. I was in  what was called reverse isolation. Which is basically isolation without  people having to wear clean suits. My mom tried to visit as often as she  could. But it was over a 2 hour drive. I was there for about a month  and a half. Mom was able to bring friends of mine with her a couple of  times. My aunt and uncle visited once, but I was feeling so horrible, I  could barely pay attention to them. I was lonely and wanted people  around, but I didn't because I felt so awful. I had the laptop, so I was  able to get some emails once in a while, but mostly I just slept and  bought things with my debit card online.
Most of the nursing staff was very nice. And of course, being who I am, I  endlessly polite, smiling and non-complaining, unless it was really  bad. Then I would just ask for medication. It was loud at night (who  actually can sleep in a hospital?), and one night i had to have a blood  transfusion. The rule is: two nurses must come in to change the blood  bags - one to read off the number and check the blood type - the second  to verify that it's correct. One man came in, by himself and changed the  bag. I reported him the next day. I worried all night that I would die  or have an allergic reaction. Cedar's is a learning hospital, so often, I  was pulled out of bed by doctors that were teaching so they could do  strange examinations on me. I had a very hard time concentrating on the  things they had me do. Then there was the nurse outbreak of chicken pox.  Every person in the ward had to have a shot so they wouldn't get that  or shingles. I was examined every day by a resident nurse, including  between my butt cheeks. I had to have my "output" measured every day.  And, as I wasn't expecting this to happen, my period started while I was  there, and I had nothing. And none of the nurses would get anything for  me. So I just bled for two days until my mom could get up there and  bring me something. The whole experience was very humiliating, but I  smiled through it all.
When it finally came down to having my stem cell transplant, I was given  a Benadryl, and told to sit back, but let the nurse know if it started  to hurt. My nurse had to stay in there with me for the entire time, to  make sure everything flowed smoothly, and I guess to make sure I didn't  have an allergic reaction or die. It was not comfortable. It wasn't  painful, but it made me feel like I needed to get out of my skin. I  wanted to sleep while it was happening, but I didn't want to bore that  nurse, so I tried to stay awake and talk to her and be cheerful. I  figured I could sleep when she left. I was fairly sick and weak,  understandably, for the next couple of days. Within a couple of weeks,  my white count was up enough and I was strong enough to leave the  hospital and go home.
On the way home, my mom told me a friend needed to talk to me about  something important. I called her and found out that her boyfriend died,  suddenly, and in her arms. She was broken-hearted. And I was for her. I  tried my best to comfort her, but I don't know how effective it was.
I got to pick up my new dog, and go home.
This time is a long time to hold back tears. Tears of anger, tears of  fear, tears of loneliness and tears of sadness. I put on as much of a  brave face as I could. Partly because it was encouraged - "It's all  about attitude" "You have such a great sense of humor" and "What an  amazing attitude you have."  It was hard to be myself. It was impossible  to show how I really felt. I was extremely hard on myself, and I still  am, about that period of time. It felt so much, the second time around,  like people I had never met, cared more about me than my friends did. It  was like I lost my support system once my dad died. it killed me inside  to think about these people that I saw all the time when I was well,  that wouldn't even hardly talk to me when I wasn't. And if they saw me,  they'd shoo me away. I don't know if this is a good reason for me to cry  so hard and so long at a movie, or why I may feel resentment toward  people that have been nasty to me for no apparent reason. But it's  happening. And I can't control it. Not anymore.